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Scott Troyan edited this page Mar 13, 2024 · 31 revisions

REDCap is an electronic data capture platform we use for clinical data collection.

Most REDCap data collection projects are one of two types:

  • Common lab-wide collection projects (self-reports, assessments, consents, prescreen surveys)
  • PI specific projects

Common Collection Projects

The Common Self-report Scales project contains the Oracle integrated self-report scales.

A complete list of available self-report scales can viewed on Oracle.

The Common Interview contains the CAPA, GOASSESS, and other assessed instruments.

Active collection projects:

  • Common Interview Scales
  • Common Self-report Scales

Inactive collection projects:

  • BBL CAPA Interview Combined
  • BBL Self-report and State/Trait Scales
  • BBL Developmental Scales (Tanner/Substance/SPQ)
  • BBL Imaging Scales (STAI/STAXI/Postscan)

Consents (design and access) are managed by clinical and BIT.

PI Projects

PI projects are managed entirely by the PI and their coordinator(s) including design, access, and user rights.

The contact forms (design and access) are managed by BIT.

Prescreen Surveys

The prescreen surveys (design and access) are managed by BIT.

Alerts & Notifications

Select BIT managed projects have email Alerts & Notifications enabled.

REDCap Alerts and Notifications

Standard and Missing Data Codes

For clinical scales (assessments and self-reports) standard codes are used:

UNK, I don't know
PNS, I prefer not to say
NA, Not applicable
oth, Other

Missing Data Codes

Select projects have project-wide missing data codes enabled. These codes can be used on all fields on a data entry form (unless a field is specifically marked with the @nomissing action tag).

UNK, Unknown
NA, Not applicable
M, Missing
UR, Unable to rate

Reports and Exports

redcap-reports

Data can be exported from either by any coordinator or PI using the Data Exports, Reports, and Stats application.

REDCap provides a training video about Data Exports, Reports, and Stats.

When making reports, please tag with your username in parenthesis after the report name (e.g. "My Report (pennkey)") and organize it in your PI's folder.

The codebook for every project is located at the top of the lefthand sidebar.

Password Reset

To reset your REDCap account password click the "Forgot your password?" link next to the login button.

If you have not set your security questions you will have to request a manual reset of your password on Slack. After you have reset your account, set your security questions. Manual password resets require an admin to intervene and may not happen as quick as you need it. Automatic ones will happen instantly.

If you need to reset your password (or any other account management) for other REDCap servers such as redcap.med.upenn.edu or redcap.chop.edu you need to follow the contact instructions on their home pages.

Account Suspension

For security reasons, all accounts automatically suspended after 90 days of inactivity (i.e. you do not log in).

If your account is suspended you will need to request reactivation in #it_issues on Slack.

Student accounts automatically suspend at the end of the current semester if not end date is specified (supervisors are notified beforehand if their access needs to be extended).

REDCap Accounts

REDCap accounts for axis.med.upenn.edu are requested on Slack after BIT onboarding is complete by the person training the new user.

All new users must complete the "REDCap: Best Practices for Maintaining HIPAA Compliance and Protecting Personal Health Information (PHI)" training on Workday (or KnowledgeLink for UPHS employees) and submit their certificate of completion PDF.

The course can be loaded in Workday Learning by selecting "Browse Learning Content" and entering the course name.

To retrieve the completion certificates in Workday go to https://www.myworkday.com/upenn/learning and select "Print Your Learning Certificates" from the left-hand menu. Enter the course name and Workday will generate the PDF for you to download.

REDCap accounts for external servers must be requested by following their procedure for new accounts.

REDCap accounts on axis.med.upenn.edu are automatically suspended after 90 days of inactivity. If your account is suspended you must request reactivation on #it_issues.

REDCap accounts on axis.med.upenn.edu are deleted when a user leaves the section and no longer have access to any projects on our server. For other servers (redcap.med, redcap.chop) you will need to manually remove access to each project if you manage the project – e.g. if a person takes another position in the school their PMACS account will still be active and they will still be able to access your data if you do not remove them from the project.

For security, we require two-factor authentication (2FA) to access our REDCap server. Instructions on managing REDCap 2FA are here.

REDCap Servers

The above applies exclusively to the BBL REDCap server, axis.med.upenn.edu.

BIT server

  • axis.med.upenn.edu is the primary REDCap data collection server managed by BIT

External servers

  • redcap.med.upenn.edu is a REDCap server managed by PSOM/PMACS
  • redcap.chop.edu is a REDCap server managed by CHOP

Retired servers

  • banshee.uphs.upenn.edu was a BBL REDCap collection server, it was retired and data was archived to bblrepo1
  • selkie.uphs.upenn.edu was a BBL REDCap data repository server, it was retired and data was archived to bblrepo1

Further Reading

PHI and REDCap