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Standard Health Record. Capture the right data, the same way, every time.
Engineering a US standard for patient health record information.
Our vision is to fundamentally shift how healthcare information is created. A well-executed Standard Health Record (SHR) will move the health system towards an integrated, personalized, prevention-focused, and modernized system.
The SHR addresses the national problem of health data interoperability by defining and implementing the core components of a standard, digital health record that will be used for US patients.
The SHR is:
- .. a simple, computable spec that defines core human attributes for care,
- .. aimed at emergency and primary care,
- .. anchors the patient as the atomic unit,
- .. understandable and verifiable by clinicians, patients, and algorithms,
- .. open source software, and
- .. critical to solving healthcare semantic interoperability.
By defining the core components of a standard, digital health record for US civilian, DoD, and VA patients, the SHR will allow a single source of truth for complete patient health data needed for patient identification, emergency care, and primary care. It will improve care coordination by providing a common operating picture, advancing the nation towards an integrated health system to modernize US health systems and processes. Patients, clinicians, and the American public will realize major benefits from improved care coordination, reduction of medical errors, and decreased costs that accompany healthier lives.
Widespread SHR implementation will result in interoperability across geographical locations and care settings. Health-related services including telecare, clinical decision support, and quality measurement will be supported by SHR, improving healthcare access, quality, and uniformity. SHR provides the foundation for collection, communication, and aggregation of patient data, accelerating secondary uses in public health, disease surveillance, post-approval monitoring, and patient-centered outcomes research.
By leveraging existing standards within the US and internationally, it will allow medical information to be stored, transferred, and merged using the SHR specification while at the same time improving information transfer by providing rightly-defined data elements, terminology mappings, and value sets. (list/logos/imgs/etc of the following: UK summary care record, sweden’s national patient summary, ONC common clinical data set, HL7 FHIR)
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- Define the components of a standard, digital health record v01.
- Demonstrate a centralized, open source, pilot HIE with SHR for Massachusetts.
- Conduct limited pilots using Personal Health Information (PHI).
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- Conduct a large scale trial in Massachusetts using Personal Health Information.
- Establish a new certification for Health Information Exchange’s, based on the ability to store, merge, and disseminate SHRs (certified HIE).
- Establish a DURSA (Data Use and Reciprocal Support Agreement) that permits SHRs to be passed between HIEs and authorized parties.
- Work with Commonwealth of Massachusetts to establish digital healthcare policies, including an opt-out HIE policy.
We are in the early stages of prototyping and defining the SHR, and seek multidisciplinary collaboration with individuals and organizations that are forward thinking in terms of meaningful health data interoperability and true precision health for individuals and populations. [email protected]
Copyright 2016 The MITRE Corporation | Approved for Public Release; Distribution Unlimited. Case Number 16-1988