If you are member in an MII project and are interested what the others are doing, what solutions are developed and where to find support, you are spot-on.
If you just started working in a medical data integration center of a German University Hospital, check the MII Quickstart Guide.
| Type | Name | Description | Contact | Link/Material |
|---|---|---|---|---|
| Specification | MII core data set | Consented for exchange within the MII | MII Working group Interoperability | MII-CDS-Specification in Simplifier, Basis modules of the MII core data set |
| Specification | Medical Information Objects | Standard for German electronic Health Record | KBV-MIO, in German | MIO-Specification in Simplifier |
| Working group (MII) | Interoperability | Platform for agreeing amongst consortia the basis for ensuring interoperability between the proposed data integration centres. Created the MII core data set. | Prof. Dr. Sylvia Thun, Prof. Dr. Thomas Ganslandt | https://www.medizininformatik-initiative.de/en/collaboration/interoperability-working-group# |
| Type | Name | Description | Contact | Link/Material |
|---|---|---|---|---|
| Data platform | Deutsches Forschungs-datenportal für Gesundheit | Central point to request data from MII locations | [email protected] | https://www.forschen-fuer-gesundheit.de |
| Working group (MII) | Data sharing | Developing a legally robust framework for data access and usage within the scope of the Medical Informatics Initiative. | Prof. Dr. Oliver Kohlbacher, Prof. Dr. Toralf Kirsten | https://www.medizininformatik-initiative.de/en/collaboration/data-sharing-working-group |
| Working group (MII) | External data | Establishes the administrative and organizational framework for incorporating and linking data from external sources such as health insurance companies, registries, and other data-centric initiatives. | Prof. Dr. Wolfgang Hoffmann, Prof. Dr. Martin Sedlmayr | https://www.medizininformatik-initiative.de/en/collaboration/external-data-working-group |
| Type | Name | Description | Contact | Link/Material |
|---|---|---|---|---|
| Project | fit4Translation | Competence development and support for the development of medical software under the regulatory framework | Dr. Myriam Lipprandt, Prof. Dr. Sven Zenker, Prof. Dr. Julian Varghese | https://www.gesundheitsforschung-bmbf.de/de/fit4translation-kompetenzerweiterung-und-unterstutzung-bei-der-entwicklung-von-16907.php |
| Database | DMIDS public database | Public database of medical devices in Germany | / | https://www.bfarm.de/DE/Medizinprodukte/Aufgaben/DMIDS/_node.html |
| Working group (TMF) | The Medical Software and Medical Device Law Working Group develops tools to support the quality and safety of medical technology research within the framework of current regulations. | Jordanka Kostova | https://www.tmf-ev.de/unsere-arbeit/arbeitsgruppen/arbeitsgruppe-medizinische-software-und-medizinprodukterecht |
| Type | Name | Description | Contact | Link/Material |
|---|---|---|---|---|
| Patient consent | MII sample patient consent | All University Medical Center locations have agreed on a standardized, consent-based approach for patients to allow the reuse of their clinical data, with input from various stakeholders and approval from data protection authorities. | / | Website with consent forms in different languages |
| Template | Template risk documenting | Template for documenting risk and protection needs analyses of data protection impact assessments according to Art. 35 GDPR in medical research. | Dr. Knut Kaulke | Direct Download, Website |
| Working group (MII) | Consent | Focuses on the design of the consent declaration signed by patients to allow healthcare data to be used in future medical research. | Prof. Dr. Sven Zenker, Prof. Dr. Dr. Daniel Strech | https://www.medizininformatik-initiative.de/en/collaboration/consent-working-group |
| Working group (TMF) | Data protection | The Data Protection Working Group has the task of advising research consortia and projects on data protection issues, in particular on the preparation of data protection concepts. | Dr. Johannes Drepper | https://www.tmf-ev.de/unsere-arbeit/arbeitsgruppen/arbeitsgruppe-datenschutz |
| Type | Name | Description | Contact | Link/Material |
|---|---|---|---|---|
| Open Source App-Framework | Compass-App | non-MDR web-app and native app with questionaire editor. | NUM-Compass Project | Repositories on github |
| Type | Name | Description | Contact | Link/Material |
|---|---|---|---|---|
| Database | TMF ToolPool | Annotated database of useful tools in health sciences and health care. | Editorial office | https://www.toolpool-gesundheitsforschung.de/ |
| Working group (TMF) | IT-Infrastructure and quality management | The aim of the working group is to support the work processes in medical research projects and to ensure the quality of the processes and results. | Dr. Knut Kaulke | https://www.tmf-ev.de/unsere-arbeit/arbeitsgruppen/arbeitsgruppe-it-infrastruktur-und-qualitaetsmanagement |
| Topic | Name | Description | Contact | Link/Material |
|---|---|---|---|---|
| Data standard | ACRIBiS | Specification for cardiovascular data to improve cardiovascular risk stratification and prediction. | Prof. Dr. Dagmar Krefting | https://www.highmed.org/en/acribis |
| Data standard | CAEHR | Specification for cardiovascular data in emergency, rehabilitation & outpatient care. | Prof. Dr. Dagmar Krefting | Website, OpenEHR-Templates in HighMed Clinical Knowledge Manager |
| Data standard | EyeMatics | Use of a harmonised core data set for ophthalmic data | Prof. Dr. Nicole Eter, Prof. Dr. Julian Varghese, Prof. Dr. Andreas Stahl | https://www.highmed.org/en/eyematics |
| Data standard | PCOR-MII | The aim is to establish the digital recording of patient related outcomes in clinics and to integrate them into the national core data set of the MII | Prof. Dr. Matthias Rose, Prof Dr. Fabian Prasser | https://www.highmed.org/en/pcor-mii |
| Data standard | PM4Onco | Harmonise and merge data from oncology centres and regional providers | Prof. Dr. Dr. Börries | https://www.gesundheitsforschung-bmbf.de/de/pm4onco-daten-besser-nutzbar-machen-krebserkrankungen-wirkungsvoller-behandeln-16626.php |
| Data standard | PrivateAIM | Development of a federated platform for machine learning and data analytics in medicine combining advanced data federation methods and innovative privacy-preserving technologies. | Prof. Dr. Oliver Kohlbacher | https://www.gesundheitsforschung-bmbf.de/de/privateaim-medizininformatik-plattform-privatspharen-schutzende-analytik-in-der-medizin-16491.php |
| Data standard | SU-TermServ | Development and administration of a central terminology server for the MII and the University Medicine Network | Prof. Dr. Josef Ingenerf | https://mii-termserv.de/ |
| Data exchange | DSF | Medical IT Structur Data Sharing Framework Community: The network coordinates the digital exchange of research data from a wide range of partners in medicine. | Prof. Dr. Christian Fegeler | https://www.gesundheitsforschung-bmbf.de/de/dsf-medizininformatik-struktur-data-sharing-framework-community-16133.php |
| Data exchange | TRANSIT | Medical IT structure, Development of a data management unit (DMU). DMU provides essential services for scientists in their role as data consumers. | Marcel Klötgen | https://www.gesundheitsforschung-bmbf.de/de/transit-medizininformatik-struktur-data-management-unit-16148.php |
| Data exchange | MiHUBx | Establishment of a data integration centre at a non-university location | Prof. Dr. Martin Sedlmayr | https://mihubx.de/ |
| Image Processing | CALM-QE | Integrating imaging data into the treatment of patients with asthma and COPD. | Prof. Dr. Anna-Maria Dittrich, Dr. Matthias Gietzelt | |
| Artificial intelligence | CALM-QE | Predicting disease (asthma and COPD) development with AI | Prof. Dr. Anna-Maria Dittrich, Dr. Matthias Gietzelt | https://www.gesundheitsforschung-bmbf.de/de/calm-qe-medizininformatik-use-case-copd-und-asthma-longitudinale-und-sektorubergreifende-16644.php |
| Artificial intelligence | DECIDE | AI-based decision support system for ophthalmologists for the treatment of diabetic eye diseases | Dr. Torsten Panholzer | https://www.gesundheitsforschung-bmbf.de/de/decide-versorgungsqualitat-in-landlichen-regionen-verbessern-13024.php |
| Artificial intelligence | DISTANCE | Artificial intelligence for risk analyses after intensive medical treatment | Prof. Dr. Gernot Marx | https://www.gesundheitsforschung-bmbf.de/de/distance-krankheitsverlaufe-nach-intensivmedizinischer-betreuung-besser-vorhersagen-13021.php |
| Artificial intelligence | EyeMatics | Identify new characteristic features of eye diseases and to examine their course during IVOM therapy using AI | Prof. Dr. Nicole Eter, Prof. Dr. Julian Varghese, Prof. Dr. Andreas Stahl | https://www.highmed.org/en/eyematics |
| Artificial intelligence | GeMTeX | Extract useful information from unstructured medical text (such as doctors' letters and reports) to assist doctors and researchers in their work using natural language processing | Prof. Dr. Martin Boeker, Prof. Dr. Markus Löffler | https://www.medizininformatik-initiative.de/en/gemtex-automated-indexing-medical-texts-research |
| Artificial intelligence | MiHUBx | AI-based decision support system for ophthalmologists to treat patients with diabetic eye diseases | Prof. Dr. Martin Sedlmayr | https://mihubx.de/ |
| Artificial intelligence | OMI | Development of a method platform to simplify the use of artificial intelligence applications so that time-consuming and repetitive tasks in medicine are carried out using AI methods in the future. | Prof. Dr. Felix Nensa | https://www.gesundheitsforschung-bmbf.de/de/omi-medizininformatik-plattform-open-medical-inference-16916.php |
| Artificial intelligence | Somnolink | Better understanding of the individual causes of obstructive sleep apnoea using artificial intelligence. | Prof. Dr. Dagmar Krefting | https://www.medizininformatik-initiative.de/en/node/791 |
| Mobile apps | DECIDE | App for monitoring the sports therapy of cancer patients. | Dr. Torsten Panholzer | https://www.gesundheitsforschung-bmbf.de/de/decide-versorgungsqualitat-in-landlichen-regionen-verbessern-13024.php |
| Mobile apps | DISTANCE | App that allows patients to send information to their attending physicians after leaving intensive care and to keep track of their own therapy progress. | Prof. Dr. Gernot Marx | https://www.gesundheitsforschung-bmbf.de/de/distance-krankheitsverlaufe-nach-intensivmedizinischer-betreuung-besser-vorhersagen-13021.php |
| Mobile apps | HELP | App that helps clinicians in regular and intensive care units decide what to do next. | Prof. Dr. André Scherag | HELP Website |
| Mobile apps | MiHUBx | App to involve patients in their cancer therapy. | Prof. Dr. Martin Sedlmayr | https://mihubx.de/ |
| Interpolar | The project aims to reduce medication problems and drug interactions in older individuals through IT solutions for risk identification and targeted interventions in hospitals. | [email protected] | https://www.smith.care/de/interpolar_mii/interpolar/ | |
| Training & education | BaseTraCE | Basic Services for training and continuous education within the Medical Informatics Initiative. The aim is using a sustaibable and flexible plattform to ensure that the education-related developements and information structures created within the consortia are maintained and made available to the entire MII community. | Prof. Dr. Dagmar Krefting | https://www.gesundheitsforschung-bmbf.de/de/basetrace-medizininformatik-struktur-basisdienstleistungen-fur-die-aus-und-weiterbildung-16899.php |
| Training & education | EVA4MII | Establishing an infrastructure to support evaluation research based on routinely collected clinical data within the MII. | Prof. Dr. Peter Heuschmann | https://www.med.uni-wuerzburg.de/epidemiologie/forschung/projekte/medizininformatik/eva4mii/ |
Note that all information about the projects, specifications, etc. is based only on publicly available sources. If you are working on one of the listed projects and your project has been misrepresented or is missing in a category, please feel free to contact [email protected].